Cushing’s recovery update: starting to feel like my old self these days
Besides the horrible hot flash I had earlier this week, I’m starting to feel like the old Kristin again. I’ve been reminiscing in the fact that I can now do some of the things I haven’t been able to do in years.
- sleep through the night
- no trips to the bathroom in the middle of the night
- able to work out on a regular basis (3+) times a week
- push myself in my work outs without feeling like crap after wards
- jump rope!
I think the biggest improvement I’ve seen over the past week or so is that I feel happier. I think part of it is that Cushing’s isn’t on my mind 24/7. For the past year, Cushing’s has defined who I am and consumed my life in every way. And now that I’m not playing the waiting game with my recovery and it’s finally happening, I think I can start to separate myself from Cushing’s.
The things I enjoy most, like mountain biking or playing outside with my son and my new found hobby painting, are slowly becoming apart of my life again. I can’t tell you how good that feels. I’m still young - and I want to feel young, not a 31 year old person living in a 70 year old body.
Even though I’ve made great progress, I’ve had some minor setbacks. Recently I’ve developed a sharp pain in my right leg/hip/butt area. It strikes at random times, so I don’t know what to think of it. So far it hasn’t prevented me from doing anything (except for the occasional mumbling of f@#$ or s@#$ when the pain strikes).
Cushing’s will always be apart of me - the scars are a silent reminder. But I think I’m in a place where it doesn’t have to consume my life.
My new painting!
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11 comments
Holy Cow Kristin,
You look wonderful and so happy, you glow…You won the battle, Cushings is in the past…now concentrate on the future !!!! Enjoy your life, husband and son.
P.S. the painting looks great too..
Laurie
xo
* Laurie - thanks! It feels great to be on the other side of this madness.
Besides the fact that I LOVE that painting and want it on MY wall! You look beautiful, congrats on the progress and obvious patience you’ve displayed. You’re one of my hero’s!
Hi Kristin,
great website & meet.up programe -wish I’d discovered all this when I was first diagnosed! Just wondering if you are still getting those hot flushes- if so get your oestrogen levels checked. I was having the smae thing and I discovered I was going through the menopause as the surgery had depleted all my hormones. Now on HRT and feeling so much better.
* Jody - thanks for your kind words of support. I can always count on you to be in my corner
* Lynne - I do occasionally get hot flushes and just attributed it to the recovery process. I’ll definitely ask my doctor to test my estrogen levels to see if that may be the cause. Thanks for the info
I’m so glad you joined our group!
Im really glad to hear your story, and see the changes in you after surgery. I am suffering from Cushings at the moment, and I am a teenager. It is hard for others to undertstand all the pain the body can make from this one syndrome. I am waiting for surgery this week, and hope all goes well. Im just hoping to loose all this weight, and feel stronger as soon as it is all over. You have really prepared me in a positive way. Thank you.
* Nat - I’m glad you found my site & hope that it offers a personal insight to recovery from Cushing’s. I wish you the best of luck in your surgery!
[...] approaching one year in recovery (Jan 29th) and I’m finally starting to feel better - my energy and stamina are improving leaps and bounds. The aches and pains have for the most part [...]
Hi Kristen! I hate to tell you but the pain you are experiencing is most likely avascular necrosis. Please get an MRI. I had Cushing’s and then subsequently was diagnosed with AVN. If it is AVN…check out Dr. Glueck’s studies and get on Lovenox and don’t get surgery! It worked great for me! Good luck, June
WOW! So, I’ve read through all of the available blogs & looked at all the pics that are on here; and I gotta tell you - I am a little relieved. In the past 3 years or so, I have gained tons of weight and my normal blood pressure & sugar levels & cholesterol levels have gone through the roof. I am now on medication for all 3 - and it always drove me crazy because while I wasn’t a skinny twig earlier in my life - I WAS a healthy weight. I thought it was due to having children / getting older / etc. But recently a new development & a friendship with a Physcian’s Assistant have turned me to look up Cushing’s. I am going to request a test from my Primary Dr. I am almost certain it will point us in the right direction. Sorry to write a book, I am just sooooo excited to know that MAYBE there will be an answer for all of this crap. And, I am glad to have found your blog - it was so very, very inspiring. Thanx!!!
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