Cushing’s Syndrome: Month 9 Recovery Update
It’s been nearly nine months since I had surgery to rid my body of a tumor that was destroying my life. To be exact, it was a 3cm benign tumor on my right adrenal gland. How could something so small make me so sick? I would later come to learn that Cushing’s syndrome was to blame.
Over the years, I developed a number of strange symptoms - most of which I thought were just in my head. When I was at my sickest, I knew my symptoms were no longer in my head. They were more real than they had ever been. I looked sick and I felt sick.
I remember those difficult times and use them as a benchmark for my recovery progress. I’d like to share the progress I’ve made so far.
Each day, recovery gets a little easier and I can see the results of hard work. More than anything, I feel good knowing that my body is healthy on the inside, because without that, I have nothing. The outer part of me will catch up in its own time. And you know what, I’m OK with that.
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4 comments
Isn’t it great to know that you can finally see the light at the end of the tunnel. I have just turned the corner myself and I am a few yards behind you. Can’t wait for the touchdown!!!
Horray
Laurie
Yes, it’s wonderful to see that there is an end to this madness - and it feels great! I’m glad to hear you’re doing well - it’s well-earned.
[...] I mentioned in my previous post Recovery Update, I have seen and felt changes in my body. But I still have a bloated-looking stomach. I just [...]
Hi Kristin,
I am so happy for you! I was wondering if you could help me? I had cushings disease for about 15 years, before I was diagnosed in Seattle, Washington. I had a Pituitary Gland tumor. My Endocrinologist told me the the operation was a sucess and I didn’t have anything to worry about. Ok that was in November 2001. My symptoms never went away, That was seven years ago. I go back for regular visits, I do a 24hour urine test. I sweat all the time and I was very emotional so he put me on Prosak, I they sent me up to see phyciatrist and she put me on Depoke and Serequal, that was in January 2007. Since then I have gained 70 lbs. I still don’t like myself and I don’t like going into public. I am too big!! I don’t think I should be on this medication.
Unable to lose weight
Excessive upper Body weight
Hump on back of neck
Severe bruising
Hot sweats - All Day Long!!!
Severe Insomnia
Paper thin skin
Moon Face
Eye sight deteriorated
Cortisol surges throughout my body
Severe emotional Highs and Lows
Serve muscle Loss
No Energy
Shaking of my hands
No Menetral Periods
Memory Loss
Kristin please help me I don’t like myself anymore and I am very upset, because how can My endocrinologist say that I am ok when I am having all of these symptoms, This has been going on too long I just want to give up!! What should I do, they don’t have a support group here in Fairbanks, Alaska, so nobody understands what I am going through.
I will be waiting for your response.
Thank you for your time.
Nina Dozette
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