Cushing’s Syndrome Recovery: 3 Months Later
It’s been three months since I had surgery to rid my body of Cushing’s syndrome. A lot has changed since my last post about my recovery progress. My body is slowly starting to gain muscle strength and my energy levels are about 75%. I started teaching my cycle class again about 5 weeks ago - that was a scary accomplishment. I try to work out 3-4 times a week - I look at it as physical therapy. I so badly want to go to the gym 5 or 6 days a week and hit the weights hard, but I have to remind myself that I have to take things slowly. This isn’t something I can just power thru because my body can’t rebound like it used too.
The biggest changes I’ve seen so far have been the weight loss in my face. Big difference - lost the jowels & no more red checks.
with Cushing's syndrome
without Cushings syndrome
The rest of my body is slow to shed the weight. I’m still on steroids (a small dose) and my body is having trouble finding balance. Speaking of steroids… After surgery I decided a change was in order - I cut my hair super short & went platinum blonde. Apparently bleach & steroids don’t mix very well because a couple of days after I become a blondie, my hair started coming out by the handful. My hair was breaking off about 1 inch from root, mostly in the back. @#$!!!! I had two choices. I could crawl in a hole & cry until my hair grew back or I could go with the flow…I still had hair on top, right? Screw it, I want a mohawk! And you know, I actually really like it. Now many women can say they’ve sported a mohawk 
The muscle & joint aches are getting better - slowly. The move I move, the better I feel. I look forward to the day I can get out of bed without hearing pop crack pop crack and feeling like I’m about 90 years old. Patience is a virtue, right?
The part I’m enjoying the most is the ability to sit still & relax and for the first time in more than 4 years I can sleep. Before surgery, my body felt like it was constantly zinging - you could almost see the electricity. Now I can sit comfortably & watch a movie from start to finish. And sleep - ah sleep! No more waking up at 2am and getting 3 or4 hours of sleep every night. Now I can sleep thru the night…just like a baby.
I’m still struggling with how to move forward and put all of this in perspective. For now, it’s just one day at a time and the journey continues.
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[...] 4 1/2 years and three doctors before I was diagnosed with Cushing’s syndrome and once I had surgery in Jan. ‘08 to remove the 3cm tumor and left adrenal gland, it’s been a long, hard road to [...]
Hi I am newly diagnosed with cushings and I;m scared out of my mind. I’m 32 and always been thick but never fat but to do that I’ve basically starved my whole life .Now that I’ve gained a ton of weight they finally figued out the poblem .Ihave been on evey antidepessant and anxiety medicine you could think of nothing ever worked and the only reason they know now is because i finally went to an endocrinologist and she suggested it and was in amazement noone ever thought of it befoe .You story has given me hope and a brighte outloo on things .I will keep reading ty fo shaing
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