the journey of a Cushing’s survivor

Glimpses of the old me

Wednesday is my 32nd birthday…oh my. It’s hard to believe that I’ve been on this planet for that long, ’cause I sure don’t feel that old. I think in my heart of hearts, I’ll be perpetually 24.

My parents had a celebratory dinner for me at their house over the weekend - good food, good wine and a super chocolate birthday cake - can a girl ask for any more? We of course had to take some pictures to mark the occasion and even I was shocked to see how different I look.

I can’t tell you how happy it makes me to finally be able to see the physical results of all my hard work over the past 18 months. And the best part is that my outer self is reflective of how I feel on the inside; happy, balanced, relaxed, youthful with (almost) normal energy levels and most of all, hope for the future.

I think I see a triathlon in my future next summer…

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4 comments

1 Bev { 07.28.09 at 5:28 am }

You look wonderful - you’re radiant! And your little guy is a cutie! :-) I’m so glad to hear you’re starting to feel better. (I’ll be 32 in another few days.)

I just found your blog recently - it’s been inspirational reading. I’m at the outset of trying to get a Cushing’s diagnosis. From all my research, and reading about the struggles others have endured, I know I’ve got a long road ahead of me - but the hope of getting better is my motivation! Thank you for sharing your story!

2 Kristin { 07.28.09 at 10:40 am }

* Bev - I just found your blog too! I’m so glad that we have another Cushie brave enough to share their journey with Cushing’s online. Bravo!

3 Nicole { 07.28.09 at 10:54 pm }

Hi,
I just found your blog, I’ve been doing different searches on google to find out actual people who have been diagnosed with cushings and some of their symptoms.
And I want to know if you think bringing up Cushings is a logical thing to do when I next get a doctors appt. Which is hard, seeing as my parents never make them for me.
I’ve had a lot of the same symptoms as you, severe migranes [that have lately gotten worse. I get one almost every day now.], insomnia, buffalo hump, handfuls of hair coming out every time I run my hands through my hair [and yes, it's not tangled.], ugly purple stretch marks everywhere, extreme fatigue, lots of excess hair [disgusting, I know] where hair SHOULDN’T be and lots more that I can’t list because I can’t think of them right now, it’s late.
But I haven’t gained weight in a couple months, even though I gained almost 40 pounds in these last two school years, and 70 pounds in 3-4 years. I’ve been to the doctor thinking I had hypothyroidism, but everything came back perfectly NORMAL and it pisses me off so much because I feel like crap, and I was a very active person, and still am at heart but I can’t do anything that I love because I’m either too tired or too heavy to.
So even though I have SOME symptoms of cushing’s, I want to know if you think it’d be a good case to make because I’ve stopped gaining weight, and I’m only 16, 17 in october. I’ve mainly gotten the “you need to eat healthier and do more activity”, but even with a food log the nutritionist said it was a mystery. I’m so SICK AND TIRED of feeling like this, and I want answers. I’m just scared because I know that if I DO have cushings, it’s because I have a tumor cause I don’t take steriods or any meds. My family has a slight history of cancer, and I’m just scared that if I do have a tumor, it will be cancerous even though statistically it’s unlikely.
What should I do?

4 Kristin { 07.30.09 at 12:47 pm }

* Nicole - given all of the symptoms you’ve mentioned, it would be cause for concern and something you should definitely bring up with your doctor. I’d suggest keeping a log of all your symptoms and if possible list when they started and how frequently you have them.

I would suggest asking your doctor to run a basic panel of blood work to see if anything is elevated - thyroid, cortisol, cholesterol, blood sugar. That’s usually a good starting point and if anything comes back abnormal, your doctor should pursue further testing to get to the root problem. Best of luck!

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