the journey of a Cushing’s survivor

Having a bad day

Most of the time I’m positive about my recovery from Cushing’s syndrome. But today is not one of those days. I have yet to experience a significant weight loss. It’s been 8 months and 16 days since I had surgery - and I’ve only lost 8 lbs. WHY?

I’m still on cortisol replacement therapy - 2 mg of prednisone a day. I know, I know that’s not enough steroids to prevent me from losing weight. My endo seems to think it is. Her theory is that for whatever reason, my body just won’t let go of the weight until I’m TOTALLY and COMPLETELY off steroids.

And if that weren’t enough, I developed hypothyroidism sometime after I had surgery. I’ve been on thyroid medication for the past 4+ months and my TSH levels are OK.

Like I mentioned in my previous post Recovery Update, I have seen and felt changes in my body. But I still have a bloated-looking stomach. I just can’t shed the weight.

How long do I have to wait for this to end? I thought for sure I would’ve had more weight loss by now. Maybe some of you would be willing to share your weight loss success - or if you haven’t been able to loose weight. I think hearing other’s stories & struggles would help with mine.

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