the journey of a Cushing’s survivor

Sometimes natural is the best way to go

It’s been three weeks since I started on natural supplements to help fine tune my recovery from Cushing’s syndrome. I can honestly say that I feel pretty damn good - not 100% just yet, but I’m getting close.

Here’s a list of the improvements I’ve had since taking the supplements.

  • increased energy levels
  • longer, more evenly sustained energy levels
  • a more restful sleep, no waking up during the night, no tossing & turning
  • BIG decrease in appetite
  • less cravings for foods high in sugar, fat & salt
  • ability to think more clearly
  • longer sustained attention span, greater attention to details
  • increased libido (I have a sex drive again!)
  • noticeable decrease in muscle/joint tenderness
  • increase in muscle strength
  • noticeable weight loss in my face and torso
  • no more hot sweats

Although all of these improvements are exciting, I still have a few residual side-effects that are lingering.

  • sensitivity to heat
  • sensitive skin, easily prone to rashes and irritation
  • extremely dry feet, even with mosturizer
  • still holding onto the Cushing’s weight, but it’s slowly coming off
  • still have a tendency to experience emotional high’s & low’s, although the severity has decreased significantly

Many of you have asked about the supplements I’ve been taking and I’ve been apprehensive about disclosing the names of them until now, mostly because I wanted to see if they really made a difference in my day to day living. Well, the results are in and I would encourage any of you who are struggling to find balance well into your recovery from Cushing’s to talk to your endocrinologist, primary care doctor or naturopathic doctor about using these supplements:

As of now, I’m still on prescription medications for hypothyroidism and low moods. Over the next couple of weeks, my doctor and I will work to find an optimal balance for these supplements and I’ll start weening off the prescription meds. I can’t tell you how excited I am about the thought of being drug free.

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9 comments

1 Still feeling unbalanced after Cushing’s? — My Battle With Cushing’s Syndrome { 07.30.09 at 10:26 am }

[...] doctor prescribed me 3 different supplements to help my neurotransmitters start functioning at normal levels. I’m taking the supplements [...]

2 Bev { 07.31.09 at 5:13 am }

I am so glad you’re starting to feel better, Kristin. I’m excited for you too! And it’s so true- natural is almost always better! Thanks for sharing your experiences with these supplements.

3 Diania { 08.04.09 at 7:10 pm }

Hey, I wanted to ask: How did you get diagnosed? I mean, what made you or your doctor decide to test you? What kind of tests did you do? I have not been formally diagnosed yet, but I am pretty sure I have Cushing’s. Can you give me more info? Did you have Diabetes too?

4 Diania { 08.04.09 at 7:15 pm }

Kristin, sorry for the previous message. I apparently hadn’t read the home page :)

I have done (2) 24 hour urine collections, testing for cortisol levels, as well as a salivary swab checking for cortisol. Now the doctor’s asking me to bring him pictures and weight history for the past 10 years. Do you have the “buffalo hump”??

5 Kristin { 08.05.09 at 1:37 pm }

* Diania - that’s great your doctor wants you to bring photos of yourself. Pictures don’t lie and will give your doctor a better idea of how long you’ve been sick. And yes I had the buffalo hump.

I wish you the best of luck!

6 Laurie { 08.18.09 at 2:08 pm }

HELLO………..Kristin

It sounds like your doing well and thats great news!! You write happier and as I told you before you even glow because you look wonderful as well. I am gonna ask my endo about natual supplements as well just to see what she says.. Thanks for sharing your still an inspiration to us all….

Laurie xo

7 Still tweeking… — My Battle With Cushing’s Syndrome { 08.19.09 at 12:15 pm }

[...] another visit with my naturopathic docor this morning to give her feedback on my progress with the supplements I’m taking. Well, it’s been a mixed bag over the last 2-3 [...]

8 Weening off prescription medications — My Battle With Cushing’s Syndrome { 09.17.09 at 1:05 pm }

[...] been on natural supplements for about 9 weeks now and I can honestly say I feel better than I’ve felt in years. I know [...]

9 Two & a half years and still looking forward — My Battle With Cushing’s Syndrome { 08.13.10 at 1:05 pm }

[...] son was almost 4 & 1/2 when I finally got a diagnosis of Cushing’s syndrome. My journey back from recovery took a solid 18 months and during that time, my son continued to get older and I became less & less capable of being [...]

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