Thank you

by Kristin

When I started my journey with Cushing’s syndrome last November, I felt scared, isolated and alone - and most of all defeated. I had always been a fighter, had faced obstacles head-on, didn’t let things get me down. No matter what the problem, there was always a solution.

The one thing I thought I had control over - my own body - turned out to be one thing I had absolutely no control over. When I was diagnosed, I kept asking myself WHY? What did I do wrong? Why is this happening to me? Will I ever be in control of my body again? Will I ever feel like me again?

I found little to no information as to what it was really like after surgery. I wanted to know how I was going to feel, what to expect. In many ways, I felt blind-sided with the effects of my recovery. It was more difficult than I could have ever imagined. I would try to explain what I was going through to my family and close friends, but it was difficult for them to understand. I don’t think anyone could really understand unless they’d gone through it too.

In my darkest moments shortly after I had surgery, I decided to start this blog to share my personal journey with Cushing’s syndrome as a way to ease my pain. But I also wanted to let others know what recovery is like, from a personal perspective. So that maybe someone else will find comfort in knowing what lies ahead. Over time, it has developed into a wonderful outlet - I guess you could call it therapy.

More importantly, I have been blessed with the responses I’ve received from others suffering from Cushing’s. And I want to thank all of you who have so willingly shared your story with me. Hearing from others has helped me in my own recovery. I know that I’m not alone in my struggles. And for that, I thank you.

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